This guide is intended for caregivers of a person whose health has been severely affected by Alzheimer’s disease or by another type of degenerative disease of the brain, such as Parkinson’s disease, the effects of multiple strokes, or even certain forms of multiple sclerosis.
Comfort Care Booklet EN Read More »
Purpose of this resource: To increase the confidence and knowledge of staff caring for residents who are living and dying in Long-term Care.
Comfort Care Rounds Read More »
The QPL is a list of questions designed to help the family carer in asking questions which may help them understand the process better. The QPL is a list of commonly asked questions that the family carers may wish to ask the internal facilitator during the FCC. This list is designed as a guide only and some questions may not be specific to all family carers, however it may be used as a guide of conversation for the family carer to ask questions that may not otherwise have crossed their minds, or in some cases may not be required at all. It is a companion to the Comfort Care Booklet.
Question Prompt List Read More »
The core message of the Comfort Care Booklet is that dementia is a terminal disease and that a palliative approach to care is therefore appropriate. The booklet provides information about the trajectory of the disease and possible complications, options to manage issues such as feeding difficulties and pneumonia, symptom management and comfort care, the decision-making process, the dying process and grief.
Comfort Care Booklet- English Read More »
The goal of this study was to examine how palliative care principles (PCP) can best be integrated in LTC is a pressing issue by exploring the tensions associated with caring for the living and dying within one care
community and informing how PCP may be improved.
Broadening End-of-Life Comfort to Improve Palliative Care Practices in Long-Term Care Read More »
The purpose of this sub-study is to examine FCC: a) content, and b) guiding processes such as documentation and multidisciplinary staff participation using mixed methods.
This study explores the development and use of five condition specific pamphlets aimed at supporting LTC staffs’ capacity to (a) inform residents and families about the trajectory of their primary medical condition and (b) initiate conversations about EOL care.
This research brief explores perceptions about compassion when delivering palliative care from the perspective of residents, family members, and healthcare providers in LTC. It identifies potential facilitators and barriers associated with providing compassionate care to residences in Canadian LTC settings.
Heart work: A thematic analysis of compassion in long-term care Read More »
The aim of this paper is to explore the readiness of Canadian LTC homes for a palliative care mandate by exploring (1) efficacy for palliative care, (2) self-reported patient-centered behaviour relevant to palliative care, and (3) quality of work life at LTC homes in four Canadian provinces.
The purpose of this study is to examine and compare family and staff perspectives on end-of life (EOL) care for people with dementia, as well as their family caregivers, who live in long-term care (LTC) homes. This study explored how EOL care is currently being provided to those with dementia, what facilitates the provision of care, and what challenges are experienced by staff and family caregivers.
Meaningful connections in dementia end of life care in long term care homes Read More »
