The core message of the Comfort Care Booklet is that dementia is a terminal disease and that a palliative approach to care is therefore appropriate. The booklet provides information about the trajectory of the disease and possible complications, options to manage issues such as feeding difficulties and pneumonia, symptom management and comfort care, the decision-making process, the dying process and grief.
Comfort Care Booklet- English Read More »
The goal of this study was to examine how palliative care principles (PCP) can best be integrated in LTC is a pressing issue by exploring the tensions associated with caring for the living and dying within one care
community and informing how PCP may be improved.
Broadening End-of-Life Comfort to Improve Palliative Care Practices in Long-Term Care Read More »
The purpose of this sub-study is to examine FCC: a) content, and b) guiding processes such as documentation and multidisciplinary staff participation using mixed methods.
This study explores the development and use of five condition specific pamphlets aimed at supporting LTC staffs’ capacity to (a) inform residents and families about the trajectory of their primary medical condition and (b) initiate conversations about EOL care.
This research brief explores perceptions about compassion when delivering palliative care from the perspective of residents, family members, and healthcare providers in LTC. It identifies potential facilitators and barriers associated with providing compassionate care to residences in Canadian LTC settings.
Heart work: A thematic analysis of compassion in long-term care Read More »
The aim of this paper is to explore the readiness of Canadian LTC homes for a palliative care mandate by exploring (1) efficacy for palliative care, (2) self-reported patient-centered behaviour relevant to palliative care, and (3) quality of work life at LTC homes in four Canadian provinces.
The purpose of this study is to examine and compare family and staff perspectives on end-of life (EOL) care for people with dementia, as well as their family caregivers, who live in long-term care (LTC) homes. This study explored how EOL care is currently being provided to those with dementia, what facilitates the provision of care, and what challenges are experienced by staff and family caregivers.
Meaningful connections in dementia end of life care in long term care homes Read More »
This research seeks to understand various perspectives on dying alone and why it is construed as a ‘bad death,’ as well as to explore the EOL care and bereavement needs of family members of residents who recently died in a LTC home.
“Who would want to die like that?”: Perspectives on Dying Alone Read More »
This research brief explores the EOL care and bereavement needs of family members whose loved ones have recently died in a LTC home.
The aim of the study is to (a) compare differences across occupational groups related to their palliative care-specific educational needs and to (b) explore the intensity of Inter-Professional Collaborative Approach in LTC
