Better communication

Meaningful connections in dementia end of life care in long term care homes

The purpose of this study is to examine and compare family and staff perspectives on end-of life (EOL) care for people with dementia, as well as their family caregivers, who live in long-term care (LTC) homes. This study explored how EOL care is currently being provided to those with dementia, what facilitates the provision of care, and what challenges are experienced by staff and family caregivers.

mySupport Study

This video explores the mySupport study which brings together an international team of healthcare researchers and clinicians to support healthcare staff to have end-of-life care discussions with family carers of people living with advanced dementia.

Question Prompt List

Learning about Dementia and Care near the End of Life: Asking questions of health care providers can sometimes be hard. Many of us simply do not know the questions we could be asking to help us better understand and plan for the future. This question prompt sheet has been designed to open up conversations between you, your family, and members of the health care staff. The answers to these questions may not be simple or straightforward; dementia affects each person in different ways.

Pandemic #9: Mend the World

Dr. Tamara Sussman contributes to this moving podcast about life in Quebec Long-Term Care during the COVID-19 pandemic lock-down.

After a stroke left him locked in his own body, Rabbi Ronnie Cahana has found ways to lead an incredibly full life. Then the pandemic came. It swept through Quebec, leaving a trail of devastation. Today, Rabbi Cahana is one of the thousands of Quebeckers left stranded in the middle of one of the worst disasters in modern Canadian history.

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