Ce guide s’adresse aux proches aidants d’une personne dont l’état de santé s’est considérablement détérioré à cause de la maladie d’Alzheimer ou d’une autre maladie dégénérative du cerveau comme la maladie de Parkinson, les séquelles de multiples accidents vasculaires cérébraux ou même certaines formes de sclérose en plaques.
This guide is intended for caregivers of a person whose health has been severely affected by Alzheimer’s disease or by another type of degenerative disease of the brain, such as Parkinson’s disease, the effects of multiple strokes, or even certain forms of multiple sclerosis.
Raison d’être de cette ressource : accroître l’assurance et les connaissances du personnel qui prend soin des résidants qui vivent et meurent dans des établissements de soins de longue durée.
Purpose of this resource: To increase the confidence and knowledge of staff caring for residents who are living and dying in Long-term Care.
CONFÉRENCE POUR LES PROCHES AIDANTS LISTE DE QUESTIONS INCITATIVES
Après avoir examiné le Guide de soins de confort, vous aurez peut-être des questions à poser lors de la Conférence pour les proches aidants qui suivra. Cochez les questions ci-dessous que vous souhaiteriez poser et n’hésitez pas à noter vos propres questions dans le Questionnaire du proche aidant principal ci-inclus avant la conférence.
The QPL is a list of questions designed to help the family carer in asking questions which may help them understand the process better. The QPL is a list of commonly asked questions that the family carers may wish to ask the internal facilitator during the FCC. This list is designed as a guide only and some questions may not be specific to all family carers, however it may be used as a guide of conversation for the family carer to ask questions that may not otherwise have crossed their minds, or in some cases may not be required at all. It is a companion to the Comfort Care Booklet.
Le message central du livret de soins de confort est que la démence est une maladie en phase terminale et qu’une approche palliative des soins est donc appropriée. Le livret fournit des informations sur la trajectoire de la maladie et les complications possibles, les options pour gérer des problèmes tels que les difficultés d’alimentation et la pneumonie, la gestion des symptômes et les soins de confort, le processus de prise de décision, le processus de la mort et le deuil.
The core message of the Comfort Care Booklet is that dementia is a terminal disease and that a palliative approach to care is therefore appropriate. The booklet provides information about the trajectory of the disease and possible complications, options to manage issues such as feeding difficulties and pneumonia, symptom management and comfort care, the decision-making process, the dying process and grief.
The purpose of this sub-study is to examine FCC: a) content, and b) guiding processes such as documentation and multidisciplinary staff participation using mixed methods.
Advance care planning (ACP) helps individuals with progressive, life-limiting illnesses communicate their preferences for end-of-life (EOL) care to family members and healthcare providers. Despite known benefits, ACP is rarely utilized in LTC settings. To address the barriers of ACP in LTC, our team developed, implemented, and evaluated the effects of disease-specific illness trajectory pamphlets (ITPs) for five life-limiting advanced clinical syndromes of high prevalence in LTC: dementia, heart failure, COPD, renal failure, and frailty.
